Showing posts with label improvement with seizures. Show all posts
Showing posts with label improvement with seizures. Show all posts

Sunday, December 11, 2011

Video comparison

Well, we are just about a month into this thing! James has gone from 30-50 seizures a day to 1 in 8 days! Unbelievable! I sincerely hope that some desperate parent, who thinks they have tried everything to help their child, stumbles across this blog someday and learns of a new path to start upon. Just to be able to give hope to another "me", to help 1 other person would make this even more meaningful.
Someday, perhaps.

Up until now you've all been following along by my words. Today, I'd like to show you 2 very different videos that will help showcase a few of Jamie's improvements.

Video #1 was taken 3 days after we returned home from starting the diet at Floating.

Video #2 was just taken today, about a month into the diet.

The differences may not jump out at you, but they sure do for me!

The major improvements I see are:

- Increase in head/neck control. You'll see much more of his face and much less of the top of his head from not being able to maintain an upright position.

- He has the ability to open his hands and use them more accurately. You'll notice him manipulating the toy with open hands not closed fists.

- More verbal. I didn't capture as many sounds as I would've liked on video number 2 but that's ok! This is a real blog. I'm not going to paste stuff together to make it seem better than it is. I'm not much of a "sugar-coater". He is laughing - and yelling! - at his toys now. It's hysterical! Maybe the next video will showcase this better. :)

- He is so much more relaxed. You'll notice that there are less extraneous movements. His actions are more deliberate. This has also improved his endurance and toleration of play.

If you can't see all these things - it's ok! I can. I see the improvement. However, sometimes, when you're too close to a situation it becomes hard to see the small daily advances. Every day blurs into the next and next thing you know, you're saying "when did he start doing this?" This is precisely why I am video taping him from time to time.

                                          Video #1...

 ...  Video #2

Very happy!

Tuesday, December 6, 2011

Day 19

GLORIOUS IMPROVEMENT!!

Today he looks good! Increased attention, better focus, decreased urine retention, even his skin looks better!

No seizures during the day and only 6 at night! 6!
On a strange note, his seizures have changed yet again. For well over a year he has always looked to the right while having a seizure and now he's looking to the left. It's almost as though his seizures are disappearing in order of most recent onset.

The grand mal/tonic clonic went away first - those were his most recent seizures (prior to starting diet.)
Next the myoclonic jerks started to change. They became less and less physical.
Then it looked more like an absence seizure with his head turning to the right.
Now it's an absence with a head turn to the left.

The only seizures preceding the absence left-turn seizures were when he was 6 months old and they were too minute to see.

I think his brain is starting to heal itself. I have no other explanation. I truly believe in my gut that this is what's happening.

I'm nervously and cautiously optimistic!