Days 23 & 24

I've been knocking on wood - or laminate - a lot lately and it must be working because James is still seizure free!

I figure if this diet does what we want it to, this blog is going to get real boring, real fast. I'm totally ok with that but my lovely blog readers might not be. My life hasn't been boring in years and a little bit of boredom is an ok thing once in awhile. Too much boredom and you tend to get lazy. I can't afford to get lazy, yet. James still has a long, hard road ahead of him and he's going to need his mom.

Today, James had an occupational therapy appointment with Nina and he decided to take a few little steps down that path that is sprawled out ahead of him. He has this beautiful, new relaxed feel about him. He's always had a laid back attitude but now his body seems to be following suit. His mind and body seem to be working harmoniously together and they're starting to do some great things. He's been laughing and babbling so much more. He's turning into quite the chatterbox! Still mostly open mouth vowel sounds bet hey, it's a great start! He has also found himself in the mirror and it appears that he likes who he sees! Why wouldn't he? He is a handsome little fellow! He smiles and laughs at his reflection, which I learned today is the skill level of a one year old! Up until now, James had only the capabilities of a six month old. What a tremendous leap in the life skills department! This mama is proud. The final figurative step on his path is in the gross motor department, somewhere he's been deeply lacking for his full two and a half years. Nina was holding his bumpy textured, blue ball and he reached up with BOTH hands and took it from her! He has never, NEVER done that before. Incredible!

Great progress:

James remains seizure free (knock.knock) and 3 baby steps forward: 1 speech, 1 cognitive, 1 gross motor.


Without continual growth and progress, such words as improvement, achievement, and success have no meaning.  -Ben Franklin

Days 21 & 22

Well...

JAMES HAD A SEIZURE FREE WEEKEND! ... AND IT'S CONTINUING!!

Day 20 + Day 21 + Day 22 = zero seizure activity.

Is this really, truly happening?

All of my birthday/Christmas/New Year/11:11/shooting star wishes have just come true!

I'm unbelievably happy.
The only downside to this is that the fear of him having a seizure will always be there. Lurking in the middle of my brain. I haven't been able to push it to the back of my mind yet. Too soon. I don't know that it will ever fully go away.
There are just some things you can't un-see.

Fear or no fear, his brain has had 3 full days of rest. Imagine what wonderful things that brain will be capable of once it is no longer stressed and hurting. Imagine what a fully healed, healthy, 2 1/2 year old brain is capable of. I can't wait to find out!

Good things handsome boy.
Great things. :)

Day 20!

DAY 20 IS MY MOST FAVORITE DAY EVER!!!!

NO SEIZURES!!!!!!!!!!!!!!!!!!!

This is James' first seizure free day in over 6 months!

Incredible!
Amazing!
Wonderful!
Glorious!
Overwhelming!
Extraordinary!

....hopefully not short lived...