Day 16

Well, hello Day 16.

Today James is more awake and alert. His endurance for therapies has improved. He looks good. :)

I put in a call to James' neurologist today. I called to have his Diastat prescription refilled but insurance says they won't cover it. Apparently we used it too quickly. Really? Rectal diazepam is going to be the one drug of his I use recreationally? Wouldn't we be more likely to run out of the Klonopin which is taken orally if I was dipping into his meds? Sigh, whatever. I know there are sleezebag parents out there who have done it so I guess I can't blame the insurance company 100%. I just need my son to be safe.

Plan B.
Like I said, I need my son to be safe. Back to the neuro call. I explained to him the situation at CVS and said here's what I would like to see happen. I don't think his Klonopin has ever actually done anything to help him. Ativan used to make a difference and if they called that in to the pharmacy I know they'd fill it before they closed for the night. Thank goodness for doctors who listen! Our new plan is as follows:

Discontinue use of Klonopin and start new prescription of Ativan. We'll do this for about 8 weeks and then ween him off. Once this is finished, we'll be about 10 weeks into the diet and it should be working at it's full potential.

This will work. Ativan has worked briefly in the past. All we need is to cover him while the diet kicks in.

Today's seizure total is again at 14. Same as yesterday.