Day 17 and 18

I'm lumping these 2 days together because, well, they sucked.

I had such high hopes for James starting the Ativan again and instead  it's been a roller coaster ride.

Day 17 he only had 2 very tiny seizures for the entire day. I was SO excited! I thought we had cracked this case wide open. Then bed time rolled around and the seizures came on with a vengeance. Over and over and over again for 43 times. It was like a kick in the teeth. Such great improvement during the day and then WHAM! Worse.

Day 18 started off even better with NO seizures for the whole day. Bed time, dreaded bed time came and it was even worse than the previous night. 44 this go-around. I felt like someone had mopped the floor with me. Sad, defeated, discouraged barely describe how I felt that night.

I wonder if it's withdrawals from the Klonopin? Should we have weened him off? He had been on it for quite awhile.

Shoulda.Woulda.Coulda.

Onward we go...