Day 10

Day 10 ... well, actually, let me start with night 9.

Night 9 James was very irritable. I hadn't seen him act that way in a long time. I'd get him to settle down and stop fighting me and then eventually he would doze off. I'd walk him into his room, lie him in his crib, hook him up to his pulse/ox and very quietly sneak out. Not even 5 minutes later he'd start fussing all over again. We did this little song and dance until about 2AM. I think he eventually just wore himself out from all the crying, arching, and hitting.

I'll now consider it Day 10...

At about 4:30, Mike and I were woken up by a sound that we hadn't heard in awhile. The high pitched beep from the pulse/ox. We rushed downstairs and James was in the middle of a seizure where his oxygen level dropped down to 70%. He came out of it on his own without the use of emergency meds but did have some minor seizures that followed most likely a postictal state. We brought him up into our bed and he did manage to fall back asleep for a few hours.

The rest of the day was pretty run of the mill. He did have some of his neurological fits and his final seizure count was at 17, not including the tonic-clonic and it's postictal ones. I'm not sure how they want me to count that - or if they want me to count the postictal twitches. I made a note of it in his binder.

SO...

Pro/con combo : had a tonic-clonic seizure but it was only one, no relapse, and he came out of it on his own. He did not require use of Diastat and the postictal stage was short - maybe 10 minutes.