Day 9

Day 9 is the day we got back into our usual routine. On Tuesdays James has speech therapy and physical therapy in the morning.
Speech therapy - Caitlyn agrees (YES!) that he is making more sounds. :) More often and more of them. The downside of therapy this morning was the seizure activity. James was still sleeping when she arrived so I had to wake him. I've found that if I mess with this little man's sleep his mind is affected by it. If I wake him from sleep, either overnight or nap time, he always seems to have some sort of seizure activity that follows. 17 myoclonic ones in this case. He did settle down and they resolved on their own which was a good sign.
Physical therapy - he was amazing! I thought for sure he'd be too tired but what a trooper! He sat, stood, played, babbled. He did anything and everything that Kristie asked him to do. What a great session to watch! Kristie also commented on my new finding of the day - calm.
Ohhhhhmmmmmm. :)
James body seems SO much more relaxed now. He used to have these "neurological fits" quite often throughout the day which never seemed to stem from one particular source. But, today, his body was quiet. He looked overall relaxed. His only "fit", I don't know what they actually are so this is the best I can describe it, came after dinner. It also came about 30 minutes after his dose of Clonazepam. I think his body has a strange reaction to it. I think it makes him jittery rather than calm. Kind of like I can't take Tylenol PM. I will fall asleep initially but then I wake up and pace the house with muscle spasms until it wears off. Super relaxing. Again, the weird quirks were most likely inherited from me. lol.
Spoke with Toni, his dietitian today also. She said that moderate - large is fine for the ketones. Any lower or higher and we'll have to reassess his dietary restrictions. As for now, continue the course.

So, to sum it up...
Good day!

Pros:
much more calm/relaxed overall
increased verbal sounds and use

Cons:
increased seizure activity since yesterday

Questions:
Adverse reaction to Clonazepam?
Sleep disturbance cause of seizures? (this is probably one of those "duh" questions but worth noting. My blog. My rules.)