Day 5

HE SLEPT THROUGH THE NIGHT!
Oh thank heavens! :) I think this is the first time he has slept for 7 hours straight since, well, maybe May? But this time it was on his own, not due to heavy medications. Woo-Hoo! Major improvement. Hopefully he'll keep this trend going! This wish is partly for selfish reasons. Mama's tired. :)
When James woke up, he woke up happy. He sat and played in his seat while I cooked him some breakfast. It wasn't the breakfast that I had planned because I forgot to buy the breakfast sausage and I can't just substitute something in for it all willy-nilly. Egg salad for breakfast? Sure. It's eggs. I served it with fruit.
OK, back to happy James...
He sat in his seat playing with a pop up toy while I cooked. He was giggling, cooing, and babbling like this was the best toy ever! It was wonderful to hear!! He looked amazing. Truly different.
After breakfast, I used a ketostick to make sure he was still in ketosis and that we hadn't unknowingly done anything to take him out of it. Perfection! This was the first time I had checked it at home. I was supposed to check it the night before but, well, there was a major poopy situation that prevented it. Haha!
James' energy appeared to be almost back to normal. He woke at 6, ate, and then played until 10:30 when he drank some water and went down for his nap. He slept until 2:00, woke up, and ate his lunch. After that we had to run over to the lab to have his bicarb level rechecked.
We pulled up to the lab and I put James in his stroller. He is just getting too big to carry around all the time. Turns out there's a bunch of stairs leading down to the lab and not a ramp in sight. Not the first time we've run into this. So,  I pick him up, stroller and all, and head on down. The doctor had faxed everything over and there was nobody in the waiting room. Perfect - or so I thought.
Liv, James, and I went down the hall to the exam room. The tech was very good and got what she needed on the first try. She put his band-aid on and told us we were all set and we'd hear from the doctor soon. Still all good - and then I feel it. It feels like someone dumped a bucket of warm water in my lap. There is pee just pouring out of James' diaper! By now he's done and the damage is also done. I plop him back down in his stroller and assess my situation. My sweatshirt is a little wet in one spot but, man, it looks like I peed my pants! James has on black pants and you can't see the difference of wet and dry material. I, however, have on jeans, and the wetness runs from my zipper all the way down to my knees! I am soaked!! No worries. A quick jog down the hallway, up a couple of stairs and I'll be at the car. I'm just about to the waiting room when I realize the after work rush has filed in. There's only 2-3 empty seats now. I just smiled and nodded and made some comment about the weather and bee-lined it right for the door. It had somehow LOCKED! Now I'm locked in a room full of strangers in my peepee pants and they've all noticed. The two women on the far wall are giggling to each other. Oh the joys of motherhood.
My embarrassment was totally worth it. I'm happy to say that his doctor just called with the results and James has responded beautifully to the new medicine! Starting tomorrow morning we're cutting the dose in half and only giving it in the morning not twice daily. Another step in the right direction.
James is currently sound asleep and the day had a grand total of 2 myoclonic seizures. If this had been one week ago, the final tally would've been around 30. This is a miracle therapy. I'm keeping my fingers crossed. I know it's still early into the diet. But - wow!

Menu:
Breakfast
Egg salad w/ raspberries & blackberries
Lunch
H.N. beef frank w/ rasp & blackberries
Dinner
Egg salad w/ strawberries

Only used one albuterol/ipratroprium neb this morning. O2 sats while sleeping is currently at 94. Another big improvement. :)